[[0018]] Week 7 Overview - Diabetic Mini MOT and a touch of partial burnout

I have decided that I am going to start naming these weekly overview posts with one line that ultimately sums up the week. It is appropriate, fitting and very much me. And thinking of whacky names for overview posts, how about like, a rating system for the week overall, after all, some weeks are good and some are just a total burn out... LOL.

I guess, to start with something semi-good for the week. I finally have all the new medication requested for me from the Doctor at the hospital clinic. Not that it is his fault it has been a long wait, I didn't know I needed to call up to push things along a bit quicker. The candesartan I already knew about as that got added to my prescription not long after my Toujeo insulin was, but I had no news on what I was getting to replace Duloxitine. Thankfully, I got a phone call from my Doctor booked and he put me back on mirtazapine straight away and gave me what he called a really good neuropathic medication which is pregabalin. Only downside of the latter is I have to take it twice a day instead of once so it's a whole new thing to remember to do in the evening, but I think I am getting one of those pill dispenser things with times of day and days of the week on soon to help me remember to take them all at the appropriate times. 

Good thing about the new neuro meds is that I no longer feel nauseous all the damn time, which is fantastic as that has been plaguing me since I started taking duloxitine last year; the worst was the sickness every time I ended up in stop-start traffic after work on the bus home, especially when inconsiderate people would glare at me for the weird noises I'd make to stop myself throwing up. I also feel my foot pins and needles less with these meds too, which is another bonus; it doesn't feel like I am clenching something with my toes on my bad foot anymore. Bad thing about the pregabalin is that for some reason, my balance is becoming somewhat off and I seem to drift a lot more than normal; I already have a cracking bruise on my arm from walking into the racking in my office. 

You're probably wondering what the tablets not in a box are, and these, my good friends and family, are the happy sleep pills I had before they were also replaced with the two in one duloxitine. EVERYONE who knows me, knows how badly my sleep has suffered without these, and in turn, my mental health, which has honestly felt like walking on the edge of a knife for the last couple of months. Sleep isn't enough to make me feel better, as are the tablets but they help me keep some kind of bare minimum control on my mental health when things get rough, which they major have been of late. I still feel down and depressed a lot and I am still overwhelmed by the sheer amount of control good diabetes management is seeming to have on my life, but I have my sleep back and I can deal with the world a little bit better now I have these antidepressants back... even if I run the chance of sleeping in my alarm because well, not slept properly in months till now!!!

You are probably wonder what I mean when I mention Diabetic Mini MOT? Well, I lovingly got this name idea from the gentleman doing the diabetic eye screening on Friday morning, after I told him that I had a dietitian appointment after the eye screening appointment.

I cannot tell you much about the eye screening other than look how massive my bloody pupils were after the eye drops... as you can guess, I had to leave work because my vision was all blurry. I'll get the results in a couple of weeks I believe but I know it will be signs of retinopathy, either the same as last time or worse since I can't remember the last time I had an eye screening appointment but I have been stresses as fuck since. 

I saw my dietitian though and was able to tell her the good news about my new long acting insulin and tablets (it was thanks to her that I contacted the hospital diabetes team about new medication last year) so she was happy to see that change at last. You may also remember the highs at lunch time that I mentioned about in other blog reviews and I have been asked to try and do a couple units extra as I may be one of the diabetics that need more in the morning, so let's see how that one goes next week!! 

I was able to admit to her that I was getting extremely overwhelmed with the amount of carb counting every tiny gram of carbohydrate in my food was giving me and that I was terrified to the point where sometimes I just wouldn't carb count or I'd binge eat and do whatever meds to cope. It is still getting to me now as I do not what the diabetes to rule every littler thing I do, and maybe I am wrong and its the demons in my head again, but I feel like having good diabetes is monitoring every little thing, acting towards every little thing, counting every little thing, medding for every little thing and I honestly cannot cope with that right now, it's really difficult. I am however being booked on a three day carb counting course, so fingers crossed, that can help stop making everything so overwhelming for me. 

Because trust me, I am shattered. I keep having to escape A LOT so I just don't think about the future and what will become of me. Which has meant I have started obsessing worse than ever, on the Pokémon games since the new HOME version came out on Switch and Mobile and I just can't stay off it. I want to fill the national dex somehow, and I think the other half is helping me to try and achieve that which is awesome... but yeah, I ended up caught for two days and a half  completing the original Pokémon Moon game as I thought I had finished the dex and had the shiny charm and I was going to hunt shinies to chill out, and then I realised I made a horrible mistake, the dex was not finished, I still needed Cosmog and Solgaleo but I had sent my Lunala to HOME so couldn't get it back to get Cosmog. Queue my panic and flapping as I remembered that GTS was going down on the old games as of the 24th Feb... so I had to run around and catch all the Tapu's on both Moon and Ultra Moon and use one to trade on GTS for Lunala which I used to get my Cosmog, then I put Lunala in the GTS to get SOlgaleo and then I forgot I did not have all the Ultra Beasts, just Nihilego... so queue frantically trading Solgaleo for the UK Buzzwole, followed by trading an UB exclusive from MOON for a UK exclusive from Sun and I thought I had got them all but didn't realise Necrozma was in this one... so had to go get him too. And don't forget spending a good 6 hours trying to evolve to get my Silvally for the dex. 

All in all, the stress was worth it and I know avoidance is not the answer to my mental health cheating me out of a break, but this obsessing is giving me the chill out I need to stop my brain from thinking about everything and more all the goddamn bloody time I am awake or trying to rest. That being said, me and the other half have a plan for making the most out of the shinies and rares in the games to the point we have a plan to get further dex's filled for the shiny charms to hunt shinies and increase our odds (this  actually helps me get to sleep quicker cos hunting is so therapeutically boring)... we also have a plan to reply games to get more shiny fodder and so on as well... so that will keep me occupied until I get my occupational therapy counselling appointment that I so desperately need |OMG! (Also, can we appreciate me being a sucker for exclusive limited edition consoles, what with the Sun and Moon sleek as fuck 3DS and my Let's GO Pikachu and Eevee switch? They also make me happy, oops).

Also on the positive front... FAMILY TIME!!! Honestly, I do have the best siblings!!! Got to speak to Lola on the phone this week and as usual, I love my little mini more more and more each time I see her! I have also been informed she loves Panda's now so means I finally have a plan to get her something nice for her new bedroom, maybe some cushions and blankets or picture or all of the above!!!

It was also my step-brother's birthday this weekend too... little Wyatt is now three years old!!! We got him some cute gifts from The Natural History Museum when we went to London, and OMG he loved the lil Triceratops we bought for him and even asked to have it to take to bed with him too OMG so cute I cannot even ❤️❤️❤️

Can't forget Milo either... such a good brother OMG He actually came round again on Wednesday when Jake was at work and bought some amazing home made curry for us to have in wraps for lunch, he also bought some crisps and tasty drink which I so bloody needed what with being strapped for cash till pay day on Thursday!!! Cannot wait to see what amazing foods he will make next and obvs, cannot appreciate enough him coming over on Wednesday so I don't go bloody insane and depressed in the house on my own whilst Jake is at work so long. 

OH CHEESE!!! Last thing... my bestie Josh is so amazing. So so so amazing. We had a big chat about diabetes and the kidney stuff and he proper cheered my up and I honestly love how having a serious conversation with him inadvertently turns into discussing random things about said serious things, for example, ways to cook potatoes to remove the potassium (in case I cannot have potatoes as much anymore further down the line) because there has to be a way to have roast potatoes and mash with a roast dinner dammit! ALSO, he was so lovely and made it possible for me to buy some cheese and crisps, things I don't need to med for, and also after I had a mini freak out that the cheap mature chedder I had to buy was well... more orange like red leicester than mature chedder... thanks to Josh, I got some proper stuff, extra mature Cathedral City cheese and omg, heaven... so much heaven everywhere, my taste buds are invigorated and happy and full of tasty cheese goodness (also look at the pic of the two cheeses... since when was mature cheddar orangy?) I don't actually know where I would be without Josh sometimes... he always knows the right things to say, knows I love honesty even i it stings, knows how to make me laugh and smile... and our little chat and the purchasing of decent cheese has honestly helped the crap storm of a week whirling around in my head.

Well, you may be wondering why there are no blood results to show. There is, I just don't like any of them at the moment so I couldn't face posting them up. Instead, I shall give you a picture of my cat Vincent giving me a big snuggle, who I love so much and I shall leave this here until next week. 

This weeks rating:⭐⭐☆☆☆

Bye everyone!!!

[[0016]] Week 6 Overview

What an absolute up and down of a week, is the only way I can seem to put this... just like my blood sugars ha! 

So, here are the blood results for the week... and honestly, what an absolute mess. I have had some good days thankfully but a lot of bad bloods seem to be taking over. I am still getting used to taking Toujeo and will need to contact my nurse about potentially upping the dose a little bit (once I've figured out getting my screen shots up on the work PCs so I can email them to her). I have started to have less hypos though, which is good... but I am also having a few more highs, but that might not be because of Toujeo, and could instead be, especially at the end of the week, down to stress of the news I got on Friday. 

So, many of you may have seen my blog post yesterday (if not, then check it out here) about the news I received on Friday in regards to my kidneys, and that they have in fact worsened since leaving hospital and because of this, I am now diagnosed with stage 3 chronic kidney disease (CKD3). I won't go into all the stuff I went into in my previous blog post about it all, because this is an overview and you all don't need to here it again, but I do think it has caused me a lot of stress, anxiety and worry which is why my blood sugars have not been easy to control this weekend. I am going to try harder next week but... I don't know what next week will bring for that matter. Nonetheless, I am still dealing and trying to cope with everything as best as I can. Just gotta wait and see what the future brings from here on out I guess. 

So, it was Valentine's Day on Friday and because of our trip to London, we couldn't do a large amount (and in the end I had an early night because of the CKD news) but when we were in London, we found this awesome shop called Scribblr, that had some proper fantastic Valentine's Day cards... and low and behold, the other half got me this card haha! Everyone at work had a good giggle about it as I had to put it on my desk... and I guess in a way, it is kind of convenient, specially as carb counting is going to be my future soon.

I shared it on one of the diabetes facebook groups I am on and OMG, I was worried about what they would think, but thankfully, loads of people thought it was hilarious thank goodness!!! Hell, it was a pretty popular post that day on there, so win win all round. And means the other half now officially wins at Valentine's Day according to the group, so I would honestly like to think I have brightened a lot of people's days with the sharing of my card!

I did get Jake an Eminem one, mainly because I got him an Ed Sheeran one last year, so felt I had to keep the music theme up... just gotta decide what kind of music one to get him next year haha!!! We also managed to get take out for our Valentine's Day meal and ordered a massive £30 vouchers worth of Papa John's pizza and sides! So so so so good haha Got to love having Paypal credit sometimes, if it means you can have a nice treat... and omg the cheesy jalapeno bites were so good, I could have eaten a bajillion haha (I also really love their special garlic sauce and have a couple spare in the fridge cos dunking nuggets in it is the best thing ever)!

I haven't really done a lot this week, just work and sleep and so on... but we did go to my Dad's and Step Mum's this weekend which was awesome. A few drinky-poos were had, played some fun games (Cards Against Star Wars is AWESOME), did some karaoke and got an absolutely banging roast dinner today which was so so so so needed and definitely satisfied my vegetable cravings (one of the reasons I love roast dinners).

But best of all, I get to see my gorgeous big boy, Vincent Valentine Kadaj the 1st, well, Vincent or Vinnie for short. He's an old man now but he is so cuddly and massive and snuggly and just, OMG I can't help but sit with him for ages and give him loves and pets and scratches and listen to him purr and so on. He's a right dribbler of a cat as well, bless him but its worth it for the massive cuddles and head bops he gives you ❤️❤️❤️ I remember when he was a baby kitten, when I first got him, and I left him on the sofa when I went up to bed to sleep... and I came down in the night to check on him and he had disappeared behind the cushions and down the back of the sofa, so for a solid week, I slept with him downstairs! I love getting to see him when I can. He's a special lil old princely man. And makes me happy and calm and chill about things when he is around. I'd love to have him with me, but living in the countryside has been amazing for him so I would never take him away from that, but I love that when I do get to see him, he is nothing but cuddles, like he can remember me looking after him like a mama when he was a baby. 

I guess the only other thing I have to report is that I finally spoke to my doctors surgery about getting my medication changed for neuropathy and  am so glad that I rang them. I got a telephone appointment with my actual doctor which I was so relieved about (I love my doctors so much, like, they get me and know that I know what is wrong when I go in so the appointments are always quick and they seem to like I have done a masters in biomedical science too). It was a good chat and he listened which was amazing and is putting me back on Mirtazapine straight away because I clearly need it after my bad lack of sleep since coming off the medication as well as the fact my mental health is dipping quite badly at the moment. He's also giving me another medication for the neuropathy which I have heard better things about in comparison to Duloxitine so I am looking forward to trying them and hoping that I get less pain in my feet. I'll let you know next week how that all goes!!!

So, I think that is all for this week for now, so thank you all again for sticking around, reading, commenting, following and sharing! I'll get the diabetes message out there some day, I hope! I can't do it without any of you after all ❤️

[[0011]] Week 4 Overview

Happy Sunday evening everyone... and apologies for the muchas late weekly review post. It has been a day and a half and then some on the organising front... and even then, things aren't organised. Slightly better, but not organised. And somewhat more disorganised too, if that is even possible. 

But we will get on to that later. First things first, the weekly blood test results review... and... it's been bad. 

Since going to the Diabetic Clinic on Tuesday, I honestly have felt so damn burned out by the diabetes again, which I haven't felt like since before hospital, when I was stressed, had stress going on in my life, when everyday was stress and I had no time to think of the diabetes. 

Again, the clinic was great and I am glad I went, as there are some positive changes on the way, hopefully tomorrow or Tuesday, whenever my prescription gets updated and changed and I have new medication but... it's the age old chat of "you are too young for complications" along with, "yes, you have been stressed and stuff but complications..." and yes I damn well know all of this and I have known for absolutely YEARS and nothing will ever change the fact that I have lived the vast majority of my life with some kind of stress and anxiety and depression and so forth... and just, I get it. I get it and I just want some changes to be positive about, like, "well done on lowering the HbA1c into the nurses target range" and "well done for having the balls to remove toxic people and life stress from your life to get better" and heck, even "well done for trying to keep on top of things and trying to keep your bloods in range" and blah blah blah. 

Urgh... its a burn out week. It really is. I'm hoping with next week being a new week, things are going to be a little bit better but, I honestly can never tell. The fact I can feel that the diabetes control is slowly starting to major control my life is starting and continuing to eat away at me and I hate it. Its becoming an obsession, and I hate that it is, because I just want to deal with it and get on with my life as normally as possible but it honestly doesn't feel like I can do that right now... not with the carb counting dietitian appointment coming up. Like I know how to carb count, I've read how too... but it seems to consume every little thing you do when you eat and I hate that... I get why, I get why it's fantastic... I just hate it because we all know eating is vital to staying alive but it shouldn't make me feel like it is taking over... and it is. I hate it so much. This is one of the reasons I rebelled so much as a kid... that and being in secondary school with T1D is bloody hard anyway when peer pressure is everywhere and you get picked on for being diabetic amongst other things. Oh well, at least I know, after following some diabetes groups on Facebook, that I am not the only one who has so many problems.

However, I have been preparing for my trip to London, which I feel like I may actually need at this point because I don't think I've had a mini break since June last year, so it's long overdue and might just give me a chance to relax, de-stress and for once, enjoy myself in the city I love. 

I've also been preparing my next blog post for you all, which I am hoping will be like a show and tell kind of thing. The picture to the left is a little bag I found whilst packing my stuff for London, and I've decided to use it for all my diabetes kit and stuff. I've never done something like this before, and tend to let things hang loose in the bottom/front pocket of my bag, but I've been seeing people doing similar so it seemed a great thing to do, and something my mental health doesn't seem to mind doing because it appeals to my sense of organisation. Plus, geeky is best haha, would you expect anything less from me? Eitherway, the other half is gonna grab some dextros tablets and what not to put in the pouch tomorrow and then it will be ready for show and tell on Tuesday, so be ready to check out post 0012! I am actually quite excited about it!!

Speaking of packing... it is what I have spent most of today doing... as well as washing up a lot of clothes because my wonderful cats are absolute dicks... and decided at some point over the last week or so, to make my life hell. Not that I didn't have a lot of washing to do or ought, but I knew what I wanted to take to London with me and for once I intended on packing early so that I wasn't rushing the night before (we will be streaming Tuesday night before we go so the more prepared the better yo!). 

Alas, I entered the bathroom on Saturday... realised a lot of the dirty clothes in there were a bit damp... and then the smell hit me. The cats had decided to protest the old litter tray and their hate of it and decided to pee on the clothes... (I think Pom Pom did most of the peeing mind you, I'll post a picture of her in another post)... but then I found some cat poop hidden neatly under some clothes and I knew exactly who had done that one. Pictured above is my beautiful shit bag of cat, who has pooped in my bedroom before and covered it with my shorts... which is kind of sweet because she is a clean kitty but OMG WHY POOP AND PEE IN THE BATHROOM WHEN YOUR LITTER TRAY IS LESS THAN TO METRES AWAY? Seriously, I love my baby snuggle butt, but I do question her life choices at the best of times. Needless to say though, both kitties now have a new litter tray, with litter liners and freshener and a cute cat paw print mat and they seem to be loving their new toilet as there have been no more accidents.

However, it has not changed the fact I am now uber behind of clothes washing to the point I have had to set up two airers, as well as hanging washing off shower doors and radiators and trying to dry stuff in the tumble dryer (which is actually drying slower than the radiators... BLEH!) I mean, I have nearly finished packing, bar two pairs of jeans and a t-shirt which I am waiting to dry/finish washing and then obvs, my back pack for travelling but... at least I am getting there? It's pretty much the only thing in my life right now that is actually organised haha

I am looking forward to London though... I get to see friends I don't get to see often (missed you Misa and Meg and Brum/Manchester crew ❤️) but I also get to see an amazing band I absolutely love, buy more band merch for the band merch/music room but also planning on going to the Natural History Museum, which was one of my all time favourite places as a kid!!! Our friends who live near us, Sarah and Mike, are also coming to see Dir en Grey for the first time and I am actually so bloody excited for them too eeeeeeeeeeee!!!

Speaking of music... guess who got tickets to see My Chemical Romance in June for a certain someones birthday? I did!!! The other halfs family helped towards them seen as he's always wanted to see MCR, and tbh I am quite excited. My diabetes on the other hand, went absolutely mental during and after buying tickets because of the anxiety of the queue and then the fact I actually managed to get them. Needless to say, this year is a fantastic year for seeing music, and I have been saying for ages that I wanted to enjoy life a bit more now I am not as stressed and bogged down with things. So roll on Dir en Grey on Wednesday, then MUCC and Skindred for my birthday and finally MCR in June! Now to pray Versailles, Jupiter or Kamijo announce for this year... would be pretty perfect! 

But I should probably bring this back round to diabetes... as per usual. I'm not sure, but I think my neuropathy might be getting worse, or the medication just is not working (because I know for a fact it is not working as an anti-depressant). Today, after all the walking I did yesterday, alongside the super manual job I did at work on Friday alongside hunting through the house and climbing over things today, the pins and needles in my bad foot has intensified again to the point that I am finally feeling the pain everyone goes on about. I am a bit concerned and  don't really know what to do because its a nerve problem so normal over the counter pain killers do absolutely nothing. I'm hoping it gets better before London, and might have to beg the fiance for a foot rub when he's filling less sick... so I'm just going to cross my fingers and hope I get some new medication for neuropathy this week.

I also think I may have figured out a way to sleep better without the aid of my old anti-depressant, Mirtazapine. I've actually been getting to sleep easier since Wednesday when I bought the new thermal 15tog duvet (we have a freezing house omg)... and I have been dropping off a lot easier. I've been reading for a while about those weighted blankets and I know its not the same but... this duvet is heavier and I think I might actually need something weighted to help me sleep better. Maybe, if I ever make some pennies off this blog, I could put them towards one of those heavy blankets? Would be awesome!!!

Anyway... that be enough rambling for one week, plus I need some damn good rest before work tomorrow as I am on the super manual job again as well as training someone on the lead role. So... be back on Tuesday guys, and thank you for sticking around!