Pride Month

Showing posts with label blood test. Show all posts
Showing posts with label blood test. Show all posts

Thursday, 7 May 2020

[[0060]] Day 51 of Self-Isolation (The outside world is WEIRD)

Day 51 (and I guess 50 as well as this is a two for one)

Evening everyone!

Queenie calling in after another interesting couple of days in the diabetes world. Oh boy, it's been another emotional roller coaster that yet again, I did not sign up for.

It's been... interesting... and it shows me how much my diabetes is affected by my emotions and so on because jeez, my bloods react to ANYTHING when it comes to emotions and it is honestly frustrating as hell. 

So, guess I should explain what has been happening?

I had to have my kidney blood tests again to see if the eGFR (kidney function) was stabilised or slightly improved with the 4mg blood pressure tablets. Seems simple, ya know, one vial of blood? HA nope. Not at all. (I believe I mentioned I would be going out for bloods in my last type 1 diabetes post yesterday).

So, I wrapped up warm, I drank about a litre and a half of water at home yesterday before heading out and had breakfast as well and everything was fine. Like, got to the doctors and only had ten mins to wait for my appt and yeah, everything was absolutely fine. Went in, felt hydrated and warm... all was good. 

And then the bad thing happened. What is the bad thing? My blood said NO. My veins were a fat (technically they're tiny but you get the idea) NO. even my hands and wrists said NO which is funny cos can usually get it out my wrists.

So what happened? Well, I was in the room for 45 minutes, and the lovely nurse tried a good three times and couldn't get the blood, we even warmed my hands under boiling water, as well as holding a glove full of water and the blood just would not happen. So, she called in a lovely guy named Ian (he's like a doctor but not I think) and he gave it a go, a solid three times, and nothing. He even went for my wrist and that didn't work. Ian came up with an idea of maybe drinking and hydrating more then trying again in 20mins, so, I went and sat in the waiting room for 20mins, drank 9 cups of water, which I think equates to another litre and a half of water, maybe more. There was a guy in the waiting room, bless him, who should have been seen at 9:10am but wasn't seen until half past because of me so I obviously apologised profusely haha! I get called back in... the nurse tries twice again and nothing... and one of my other fave nurses, Carol, came in and she tried and just nope. Prodded nine time with needles in one day and I was totally done. I think they could see I was so damn frustrated about it all plus I don't wanna go to the hospital for bloods at the moment so I know they did everything they could. I think I was just major mad at myself for my body just being an ass.

I think I have written about this before tbh. I have always had a bit of a problem with having blood tests and have done for the last couple of years, maybe a bit longer, maybe like 8 years? And I always joke that I should not be diabetic cause I can't seem to handle a simple blood test. I think it just largely upsets me (hence my facebook rant about it yesterday) because I do honestly try so hard before my blood tests, by drinking loads, wrapping up warm and like, exercising my hands and arm to get the blood running but... it just never seems to work. The only thing that does work is this one woman at the hospital in haematology, I don't know her name, but she can always get it out of me and normally it's around 3 or 4pm... but no way am I waiting in haem right now, no way. 

I got home anyway, and I just felt terrible. I think I went into shock as well after being stabbed by so many needles (which is hilarious because I don't mind blood tests in the slightest, the colour of blood to me is fascinating) but like, my bloods shot up, I went kinda clammy and I think I just went to bed because I was honestly just so done with everything for that one day.

The nurse booked me to come in today, well, double booked me with my other two favourite nurses, Carrie and Gina whom I absolutely love so much. (Turns out we should have waited a week but oh well). Carol also said, doesn't matter how sunny it is, layer up loads and drink even more... so, that is what I did today, as well as some exercise on Just Dance beforehand.

So the first two pics haha! So I went to the surgery yesterday in a tee and a fluffy hoodie... and today? It was a tee, a hoodie and my fluffy coat for seeing Skindred. And some thermal socks and my super warm trainers. I. WAS. BOILING. Like so bloody boiling, I was sweating and I could smell myself, it was absolutely grim. Thankfully, I didn't go through the waiting room this time... which I will explain.

I got to the surgery an hour and ten early today... because the buses are crazy right now. Usually the number 1 is every half an hour but it is now it's one every 45mins, then 1hr 15mins... so I either got to the surgery an hour and ten early or ten mins late... so I went early. Figured, there is a bench behind the surgery on some grass so I could grab some lunch and more water and just wait till I needed to be seen... but I actually bumped in to one of my nurses, Gina, and she said if Carrie was free, they would try and get me in earlier. They didn't disappoint either, I was in at dead on 1pm instead of 1:30pm! Carrie came out in her PPE finery and called me in through one of the back entrances to the surgery, queue both nurses giggling as I said I had never been in the back way before haha!

Speaking of going in the surgery... it was weird yesterday. Like, the buses are still observing their protocols that I mentioned on day 16 of self-isolation. But I hadn't seen my surgery until yesterday. They've moved two rows of chairs in the waiting room, you can't really talk to the people on reception unless you hover for a bit and you have to ring a bell to get access to inside providing you have an appointment as well. Everyone is in masks n stuff and yeah, it's both weird but cool how my surgery has adapted to the big virus. But yeah, today I went through the back way, well, through a fire exit that went into like a sink, cleaning nurse station thing into the nurses room haha, I felt so naughty haha!!

I did think things were going to fail. Carrie managed to draw blood but the blood wouldn't do what it was meant to do and go down the tube/into the syringe. She tried three times though, and ended up calling in Gina to have a go. We had all been laughing and joking about the whole thing anyway, just because my body is an arsehole and why is there no like rules for being diabetic of which one should be being able to have a blood test nice and easily with decent veins haha!!!

Thankfully, Gina had a feel and got it first try, and OMG I was so happy I could have cried. She managed a decent vial as well which was a bonus too.

She did say a few things though... as I have always been curious as to why my bloods have got worse over the years. And honestly, no-one really knows. But, it was an issue my gran had but no-one else in my family so could maybe be investigated if it continues to be an issue. ANYWAY, we agreed that next time, they should wait a week to do more bloods so that my veins have time to recover from being poked so many times, which I can see where she was coming from because I feel that Carrie would have got the blood first time had my right arm not been stabbed to death yesterday. Like the blood was there, but my veins supposedly have this ability to collapse/close up when a needle appears, which you can imagine, is frustrating as hell. It could also be potentially kidney related, what with the microvascular system being very closely related to kidney health and function... so the best and only thing that can be done is to wait till the afternoon for bloods at my surgery and also to drink wayyyyy too much. (Also, my blood is far too thick for a solid 3-4 hours after waking up, which with small veins, is a problem).

Anyway, they got the blood. I was happy. I have not felt this good in a while. And hopefully, its the last of the needing bloods for at least a month and half, well, June sometime, whenever my next renal appt is. I won't lie, I crashed for four hours, so maybe the onslaught on my veins does actually make me feel not okay even if I don't mind the blood tests themselves... but either way, it is blood damn well done, finally (lol). 

So yeah, emotional roller coaster. Thank God for my mental health calendar, the fact the coop in BBH had one box of my fave monster and well, my anti-depressants. I do feel like I could have been so much worse, but lately, I seem to have this uncanny ability to bounce back after a few hours, which I never used to be able to do. It makes me wonder if it is because I am not at work and stressed out therefore I am actually focusing more on myself and my needs and well, learning about how I work, I don't know. I feel like yesterday should have broken me and if I am honest, if they hadn't got the blood out today, I think that probably would have broken me as well, but it all worked out in the end so thank God we didn't have to wait and find out if I was gonna freak out. Either way, I still think this is the best my mental health and diabetes has been for years. Maybe I am meant to be an at home kind of work person? I don't really know.

It's given me stuff to think about anyway.

Before I sign off, I want to show you a ring that my amazing keyworking other half got for me cause of, well, all the stuff going on at the moment. 


"Keep (fucking) going."

Never have truer words been said.

That is it from me tonight! Time to share the heck out of this blog and get that view count up again!!! One day I will get adsense on this account, ONE DAY!

Over and out, mes amigos.







Sunday, 9 February 2020

[[0013]] Week 5 Overview

Can you believe that it's February already because I sure as heck still can't! Heck, I'm paid in less than three weeks and after the six weeks of no pay because Christmas and New Year... it's all going by so quick, what the actual hecking heck?!?!?


It's actually been a busy week but thankfully, it has given me some (what I am hoping) is quality content for next weeks blog posts! Gotta reach that 500 views and fingers crossed, make it up to 10 followers! (Seriously, how do people get blog followers, this is beyond me nowadays haha). Alas, I have been rather busy which is why I have not been able to post very much, but I will keep this post short and sweet about diabetes this week... as the overview should be!!!

So, mental health wise this week... things have been better, but that is a culmination of many things, mainly the fact that I went to London with the other half, saw Dir en Grey for the eighth time (and omg this is definitely one of my favourite shows from them, plus unexpected Kodou in the encore!!!) and then shopping round London and family times with the other half's family.

After last year, it was exactly what I needed as I haven't really had any proper time out from life for a while, and this is honestly what the doctor ordered. I had such an amazing time, alas my blood sugars say otherwise, but look out for a post next week to see my London gets, gig low down and excitement and dinosaur posts as honestly, you will never see me look happier!

So, my bloods this week have... not been great and I am actually unsure why other than I know I let go a little bit in London and sometimes its hard to find the carb content when you're having dinner out and trying to not hypo in a gig. 

My new night time meds (Toujeo) seem to be working okay but I'll know for certain over next week now that I am returning to my normal daily routine. SO fingers crossed it is working!  

I have noticed that when at work, my bloods seem to spike a lot after my breakfast, and I am not sure if that is because I am not doing enough insulin in the mornings or if work in the morning has been stressing me out. But it seems to be the same steady theme everyday that I am at work because by the evening, things tend to have settled down. I'm going to keep an eye on this though, but I don't expect it to change so the only thing I can really do is start doing extra medication and hope that it doesn't knock me out with a hypo before lunch.

I had a lot of problems with my blood sugars on Saturday and I am still not sure why. I ended up having to over insulin to try and get them down because they kept staying stupidly high. They have settled today mind you... and I am still trying to figure out what was causing the issues yesterday. I had considered anxiety because I haven't drunk alcohol for a while and even though I didn't drink silly (and alcohol is meant to lower blood sugars), it took all day and night to get my bloods somewhat reasonable. But this is why I don't think it was stress and anxiety because I had been alright mentally the whole time... the world is a mystery to be quite honest. Sometimes there are things even I do not understand. 

I guess the last little update is that I may finally be getting some new medication for my neuropathy next week, just am unsure when that decision will be made. I am expecting kidney tablets again either way so I think once those are through at the doctors, the new neuro meds will be to. I noticed yesterday that Duloxetine has finally been taken off my repeat prescription so something is definitely happening, I just don't know when. I just hope and pray that whatever I get means I can be out back on Mirtazapine again for my mental health and sleep and that whatever new tablet it is stops me feeling nausea and travel sickness all the damn time. 

So, diabetes wise, that is it for this week! But I'll be back with some fun posts next week so be sure to follow, share and so on and I will speak to you all soon ๐Ÿ’™

Sunday, 26 January 2020

[[0009]] Week 3 Overview

Well, I can safely say this week has been a lot kinder, thank goodness!!!

This weeks blood results chart.
I shall start with the weekly blood tests first, get the nitty gritty of the diabetes part out the way to explain the rest of the week!

The one big thing that I notice here is... WAY LESS HYPOS HALLELUJAH! There have been a couple but they have been a little simpler to deal with. And luckily for most of them, I had something at home for them (except last nights, where I had to resort to golden syrup on a spoon and some not so tasty out of fate mini marshmallows๐Ÿ˜ซ).

Week 2 was rife with hypos, but I received some tips from a diabetes group on FB about drinking something like milk before bed to help stop sugars dropping in the night, alas, only had hypo drink so I had a couple of sips of that and it helped with a couple of night time hypos (as you can see, I hypoed last night as nothing sugary for me to have before bed!!!). It's actually pay day tomorrow so I am planning on buying some milkshake powder and milk and plan on having either warm milk before bed or a milkshake, and hopefully that will help me stop having night hypos, so watch this space!

I have had a few more hi results but, these don't alarm me too much because the amount of his I am having nowadays is a lot less than last year, which is a massive relief. This means I am getting some kind of diabetic control back in my life. Its ridiculous as I have had the condition for 27 years and cannot remember a day without it but yet it has taken me all this time to get some kind of good results. Better late than never is what I keep telling myself, but... some damage has already been done, sadly. 

Me and my lil mini me.

All in all, it has actually been a pretty okay week. I got to spend a lot of time with my youngest sister Lola and her dad this weekend which has been absolutely lovely and has brought sooooo many smiles to my face! They recently moved to their new home which I am so honestly thrilled about, and I got the joy of making up some of their furniture (which is one of my super secret loves haha, give me flat pack any day friends!!!). It's just so amazing to see two lovely people so happy and just, omg, my face hurts from smiling so much. Plus OMGOSH Lola has some AMAZING toys that I so wish they made when I was younger, like this super cute modern little kids kitchen, which is all smart and silver and black and just WOW, love it! 

Honestly, my little sister Lola-Lollipop means the absolute WORLD to me. She asks questions about me having diabetes and I love explaining it all to her. This weekend I was telling her about all the cool food I can eat that I don't have to medicate for, as her dad bought us Peperamis to snack on and I learnt this week at work that they have no carbs in therefore, new snack I don't have to med for! SO AWESOME! Not only that, but, I love how smart and clever Lola is, and she honestly reminds me of me when I was a kid... heck, she even looks like I did when I was little which is so creepy scary cos we may have the same mom, but different dads! Love her so so so much and I am so so so so happy I got to spend the weekend helping her and her dad in there lovely and beautiful new home. It's so good to see her happy and smiling, and knowing she is happy and smiling makes me feel so super happy too ๐Ÿ’“๐Ÿ’›๐Ÿ’š๐Ÿ’™๐Ÿ’œ

Fortnite streaming shenanigans.
In other news, streaming is getting better and better! I had some salary sacrifice left over from work, so decided to use it to get me and Jakey McBooty a capture card for streaming and OMG it makes such a difference to our streams and I absolutely love it! We still aren't the most professional, but we are having so much fun with everything related to it and its helping me come closer to doing one of my three dreams, which is streaming Pokรฉmon games! (And maybe Animal Crossing and Final Fantasy too!!!) I don't know when I am going to start streaming from my own channel as of yet as need to set up things with stream labs and work out streaming and audio from my switch but needless to say, this capture card is an absolute game changer and a half!!! Also got to stream with my lovely friend Pete and his daughter as well (who I have been informed is pretty damn good on Fortnite) and my brother hopped on as well... so much fun! Roll on future streaming days! 

We've been planning some illustrations as well as future things to stream as well, one being a couple night on Valentine's day with a lovely take out and drinks and potentially trying out Minecraft for the first time! Honestly, everything is so super exciting right now, I'm so happy!

Super Insulin Pen, the Super Hero of
Team Super Insulin.
Also this week, well, today actually, I applied to be a social media ambassador for my favourite charity, JDRF (Juvenile Diabetes Research Fund). You'll see me talk about them quite a bit if I am honest, I love the work they do (and one of the taglines in the application thanks was "help make type one, type none!"and I love it. We fundraised for them for their Game2Give campaign last year in which we raised £200 for the charity, and we should be at least be doing that twice more this year as well (it's going to be awesome now we have a better streaming set up!!!). But no, it's something I have thought about doing for a while, what with writing this blog now, along with the fundraising in the past (altogether we've raised about £320ish altogether) and then my dissertation in which I made kid friendly leaflets explaining what T1D is and so on... using social media to help promote awareness for T1D research and finding a cure is something I just had to do. Which leads on to my second dream in which I would love to work more for Type 1 Diabetes, whether it remains social media and writing, to fundraising, talking to people and educating and so on... its something I need to do. Plus, once my health and medication is sorted out, I may look into becoming a community support ambassador for JDRF, attending events and liaising with others, raising more awareness and so forth. I'm so so happy I took this leap and I look forward to writing about future developments, and who knows, I might be able to get my diabetes illustrations to a bigger audience in the future! 

Bob and Betty,
the insulin producing
Beta cells of the pancreas.
My one last dream is to write a book of my life, or a screenplay, called "Ordinary World?"... maybe I will apply for that masters in creative writing and publishing... one step at a time though, I don't want to overwhelm myself!!!

So, next week doesn't look too bad... although I have my first ever appointment with the diabetes team at my local hospital on Tuesday which I am a little bit terrified about. I have not seen a diabetes team there in YEARS, for the sheer fact I hated going, hated how I was spoke to as a kid and just... I don't even know, I hated going. I have accepted it now though and for the sake of my future and mine and Jake's future, I do need to go. But I have so much I need to tell the doctor about... and not only that, this doctor doesn't know me like my nurses at my surgery do, he doesn't know my history and why my diabetes has been a trash show all these years... so for the love of all that is holy, I hope they understand because I don't want to be terrified of going again. I also know that I'll be doing one of my old favourite jobs on Friday at work, but I haven't done it since I went in to hospital last year, and I currently don't know how my foot or my nausea will cope with it... so... long story short, next week will either be absolutely fantastic, or horrible as hell.

As always, watch this space! And thank you to my new followers and for those who have read my blog! I noticed my more informative post about cold and diabetes has done really well, so I think I am going to try and do another informative post this week, maybe even explain how T1D happens with my old trusty illustrations!!!

Laters lovely people ๐Ÿ’™ And thank you so much for sticking by me too.